The Neurologist

The Neurology Appointment
Monday, March 15

After six long weeks, Addison's appointment with the Neurologist finally arrived. The seizures, while constantly in the back of our minds, have now become almost a distant memory (thankfully/knock on wood). Two episodes, three weeks apart - with her first cold in the middle - seem like a blur. We tried not to think of it or worry about it too much in this time, and just patiently awaited this appointment.
The appointment was at 6pm, so Tim had the day off and I went in to work early so I could leave at 5pm to get to the appointment in Niles. We sat with the Neurologist and re-told the story of her two seizures, stories that we have repeated over and over again, it feels like a scripted narrative.
Tim told his story, how this also happened to him four times between the ages of 6 months and one year. He was placed on seizure medication until he was 5-years old at which point he was taken off and did not experience any more episodes. He knew this information at the time of Addison's first seizure and that was very helpful to the medical staff and Addison's pediatrician. However, Tim did find it odd that this possible genetic issue began with him - which is why he never thought it was genetic.
Then, we found out that this also happened to Tim's mom twice when she was an infant. So, another piece of the puzzle.
The Neurologist found all of this background compelling and was happy that we have this family history to explain Addison's episodes. Since Addison has already had blood work, an EEG and a CAT scan - all clean, plus the fact that her seizures were not accompanied by a fever, the next steps would be to get her on a prescription and/or schedule her for an EEG. But since the family history has resulted in the seizures being outgrown with Tim and his mom growing up just fine - there is seemingly no need to drug her up or subject her to rigorous testing.
So, in essence this is a closed case. We will revisit if (again, please knock on wood) Addison experiences regular seizures. For the meantime, we still have her syringe medicine to give her in the event of another seizure. But until that happens, we are moving on. We hope that she has outgrown this and that we have put this behind us.
While this is an answer, but not a "cure" and that it can still happen - we are not going to lose sleep over it. We are educated and prepared in the event of a recurrence, but we will drive ourselves insane if we fret over it day and night. Besides, there are already hundreds of fears we are already equipped with as parents!

Thank you all for your support, prayers and concern over the past couple months. Addison continues to grow and learn in so many amazing ways, that everyday we are thankful to witness it.